Participation in National ALS Registry surveys can help scientists learn about ALS

Posted on Monday, February 4, 2013 - 09:00, By: Amy Madsen
The identification of nongenetic risk factors can help scientists better understand and determine the causes of ALS. The work to uncover these factors is being facilitated by the National ALS Registry, funded by the federal government and headquartered in Atlanta at the Agency for Toxic Substances...

Launched on Oct. 19, 2010, the National ALS Registry has grown to include registrants from all 50 states — but more ALS registrants are needed

Posted on Monday, October 1, 2012 - 09:45, By: ALSN Staff
In the two years since it was launched on Oct. 19, 2010, the National ALS Registry has grown to include registrants representing all 50 states and the District of Columbia, and developed into a comprehensive resource in the fight against ALS.

Officials encourage everyone with ALS, especially those newly diagnosed, to enroll and complete all surveys

Posted on Thursday, July 14, 2011 - 11:24, By: Miriam Davidson
In hopes of collecting as much information as possible, the National ALS Registry, which opened in October 2010, already is expanding its reach. Registry officials have made the enrollment process easier and are adding surveys about potential risk factors to the registry’s website.

Researchers hope to speed the search for effective ALS treatments by compiling a national database of information from patients and families

Posted on Wednesday, October 20, 2010 - 09:17, By: Miriam Davidson
After two years of laying the groundwork, the Agency for Toxic Substances and Disease Registry (ATSDR) has opened its National ALS Registry to collect information from people living with ALS. Scientists at the ATSDR, which is part of the Centers for Disease Control and Prevention in Atlanta, hope...