National ALS Registry

Participation in National ALS Registry surveys can help scientists learn about ALS

Posted on Monday, February 4, 2013 - 09:00, By: Amy Madsen
The identification of nongenetic risk factors can help scientists better understand and determine the causes of ALS. The work to uncover these factors is being facilitated by the National ALS Registry, funded by the federal government and headquartered in Atlanta at the Agency for Toxic Substances...

Launched on Oct. 19, 2010, the National ALS Registry has grown to include registrants from all 50 states — but more ALS registrants are needed

Posted on Monday, October 1, 2012 - 09:45, By: ALSN Staff
In the two years since it was launched on Oct. 19, 2010, the National ALS Registry has grown to include registrants representing all 50 states and the District of Columbia, and developed into a comprehensive resource in the fight against ALS.

News about the C9ORF72 gene, National ALS Registry and Cytokinetics' experimental drug was reported at the 2012 American Academy of Neurology meeting

Posted on Friday, April 27, 2012 - 10:49, By: Amy Madsen
Among the reports given at the 2012 annual meeting of the American Academy of Neurology, being held April 21-28 in New Orleans, was information about research into amyotrophic lateral sclerosis (ALS).

Questions and answers about ALS and the upcoming National ALS Registry have been posted online

Posted on Saturday, October 10, 2009 - 14:34, By: Margaret Wahl
The federal government has released preliminary details about the new National ALS Registry, which will be launched in late 2010. A list of frequently asked questions (FAQs) about ALS and the registry can be viewed online at