MDA Webinars Focus on ALS Medical Management, Research, Advocacy

by ALSN Staff on Thu, 2010-07-01 15:06
Article Highlights:
  • In conjunction with National ALS Awareness Month, MDA hosted three public webinars in which participants were able to direct ALS-related questions to featured experts.

MDA hosted three ALS-related webinars (Internet-based seminars) in May, in conjunction with National ALS Awareness Month. These webinars, which allow participants to direct questions to the featured experts, are archived on the MDA website.

ALS Medical Management, produced May 10, featured three neurologists who specialize in ALS discussing the implications of the ALS Care Guidelines, which were released by the American Academy of Neurology in October 2009. The panelists were Robert Miller, co-director of the Forbes Norris MDA/ALS Research Center at California Pacific Medical Center in San Francisco; Hiroshi Mitsumoto, director of the Eleanor and Lou Gehrig MDA/ALS Research Center at Columbia University Medical Center in New York; and Ericka Simpson, co-director of the MDA/ALS Research and Clinical Center at Methodist Neurological Institute in Houston.

The ALS Research Update, produced May 28, featured neurologist and MDA research grantee Merit Cudkowicz, who directs the MDA/ALS Center at Massachusetts General Hospital in Boston; and Jonathan Glass, a neurologist and MDA research grantee who directs the MDA/ALS Center at Emory University in Atlanta.

Cudkowicz discussed the Northeast ALS (NEALS) Consortium, which she co-directs. The consortium is a group of 92 medical centers that has a scientific advisory board and a partnership with leading ALS basic scientists. It is dedicated to the rapid execution of ALS clinical trials. (See the NEALS website for several open ALS trials and other information.)

Glass discussed the status of a small trial at Emory testing the safety of injecting neural stem cells into the spinal cords of ALS patients (see "Stem cell trial at Emory on track").

The ALS Advocacy Town Hall webinar, produced May 25, featured Annie Kennedy, MDA’s vice president for advocacy, who described the focus of MDA’s advocacy program in ALS and outlined ways families can get involved. For more, see “ALS Advocacy.”

To be notified of upcoming webinars, be sure your local MDA office has your e-mail address. Webinar participation requires both Internet and a long-distance telephone connection.

ALSN Staff
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