by Patty Blake on Wed, 2015-07-29 14:22

We try to make the most of the little things. When it became pretty clear I had developed an ingrown toenail (Eewwwww!) Alan scheduled a visit to the podiatrist I saw a couple years ago for the same problem. I really like this doctor because he’s so easy-going and funny. While we waited for the anesthetic to numb the affected toe, he trimmed — & “dremeled” — all 10 nails. No polish, though. Oh well. ;-)

Patty Blake

When we left the clinic, my toe swathed in gauze and bandages, we decided to take my caregiver’s advice and pop over to the dollar store in search of replacement reading glasses for me. In the past couple of weeks, my prescription “computer” glasses’ frame broke irreparably, and then the spare reading glasses I was using fell apart. Literally. Somehow the plastic frame cracked and the left lens fell out. I could still use them, though, because my left eye is pretty much blind anyway due to my cataract. (FYI: If you’re on my left, don’t assume I can see you.) But, not only did the missing lens cause the glasses to feel lopsided, it looked ridiculous. So off we went.

Dollar stores are fun! And potentially hazardous to your wallet. After all, everything you see is only $1! Or less! Oh, I guess there may be some exceptions. But, wow!

We found some cute reading glasses for me. And some new sunglasses. And several other “necessities.” I strongly suspect Alan will return before long to see what other treasures he can discover.

It may not sound like much but it was fun to get out. Except for the numbing injection in my toe. .::shudder::. Yeah, when you’re as inactive as I am, it doesn’t take much to make you happy! Woohoooo! Sing it, Pharrell!

And the fun doesn’t end there! We made it to church today, and that always causes a spike in my happy-ometer. (If that isn’t a word, it should be.) And then after church we stopped by our favorite taco shop to pick up some rolled tacos. Yum! Now, I admit, these are not easy for me to eat. But with Alan’s help, I probably ate the equivalent of one rolled taco. Besides, my favorite part is the guacamole and shredded cheese! See? Soft and delicious!

This week has more fun in store for us. It’s time for my quarterly check-in at the ALS clinic at UCSD. That’s on Tuesday. Then on Wednesday … (squee!!!) wedding dress shopping with D#1 and a small entourage! What fun! By Thursday, I should be ready for a little spa time with my hospice home health aide.

Whether out and about or at home, no matter what physical limitations ALS imposes, my joy is in the One who makes sunsets and rain and blue skies. Together with the pounding surf, wind through the trees, twinkling stars and nodding flowers, I will rejoice.


… yet I will rejoice in the Lord,
I will be joyful in God my Savior.
Habakkuk 3:18

Love, Patty

This blog was posted originally on July 26, 2015.

Note: Visit mda.org/als to learn more about MDA's fight against ALS. The site offers powerful stories by people living with ALS, including Patty, as well as other helpful resources so you can get involved and help take action to end ALS today. And, be sure to visit MDA's ALS disease information center to learn more about ALS, its causes, signs and symptoms, research and more.

About the Author

Hi. I’m Patty, and I’m a wife and mom to two grown daughters, and I'm in my 50s, dealing with amyotrophic lateral sclerosis or ALS (also known as Lou Gehrig’s disease, or motor neuron disease). This blog is my journey through uncharted waters. People ask me constantly how I’m doing. The short answer is “OK.” I add “so far” in my head most times. So that’s what I’m calling this little corner of the interwebz, OK, So Far. So if you’re up for it, come along on this roller coaster ride known as my life. I can’t promise much in the way of entertainment, but I’ll try not to be too boring! Thanks for stopping by.

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