Caregivers

Posted on Tuesday, November 1, 2011 - 10:00, By: Amy Madsen
Editor's note: This is part of a larger story about the science and effects of frontotemporal dementia (FTD) in ALS. For more information, see When the Thinking Parts of the Brain Go Awry in ALS.

With the help of planning, persistence and technology, some people prefer to live on their own

Posted on Sunday, May 1, 2011 - 14:35, By: Miriam Davidson
When it comes to living independently with ALS, Fern Cohen of Queens, N.Y., tells it like it is. “I can live without a man,” Cohen states on her blog, “but I can’t live without my machines.”
Posted on Monday, November 1, 2010 - 14:27, By: Miriam Davidson
In most respects, Home Helpers operates like a traditional care agency. It recruits and screens trained caregivers to go into people’s homes, and help them bathe, dress, eat, cook, clean and do laundry. Its staffers run errands, go shopping and take clients to their doctor appointments.
Posted on Saturday, May 1, 2010 - 14:09, By: Miriam Davidson
How many times in your journey with ALS have you heard someone say, “Let me know if there’s anything I can do to help?” “Thanks, I will,” is usually the response, but then no one follows up. Family and friends may be sincere and well-meaning in their offers of help, but they don’t realize how hard...

Medication, care coordination and advance planning leave little to fear at the end

Posted on Monday, March 1, 2010 - 13:21, By: Amy Madsen
It likely crosses the mind of every individual who receives a diagnosis of ALS, if not immediately then soon thereafter — but it’s the question no one wants to bring up. What happens at the end? Despite their reluctance to ask, people want to know: When the end comes is it going to hurt? Will I...

People with ALS, caregivers and professionals ponder the value of internal urinary catheters

Posted on Monday, March 1, 2010 - 11:40, By: Margaret Wahl
When ALS weakened Jane Cheng’s mother, her caregivers found it took a great deal of strength to help her transfer on and off the toilet. “I twisted my ankle a few times when attempting to turn the pivot disk with my foot while supporting most of her weight,” says Cheng, who cares for her mother in...
Posted on Friday, January 1, 2010 - 11:42, By: Bill Norman
For some, “hospice” is a vague idea whose connection to death leads to outright rejection before the true facts are known. In fact, hospice neither prolongs life nor hastens death. Instead, it offers practical care and support at a difficult and sometimes traumatic time.

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