Legislation and Policy

Posted on Tuesday, April 1, 2008 - 17:00, By: Bill Norman
Former Senator Bob Dole and David Jayne, who has ALS, pushed Congress to loosen Medicare homebound restrictions.
Posted on Friday, February 1, 2008 - 14:38, By: Bill Norman
Army Ranger veteran Beau MacVane, battling ALS, works out daily on his trike, and with special lines constructed in his back yard.
Posted on Sunday, October 9, 2005 - 17:00, By: Freelance
When I made the choice to live on a ventilator in 1997, I had no idea how many times I would have to fight for the private duty nursing (PDN) that makes it feasible for me to safely stay at home with my husband and young son. Once I became vent-dependent, my doctor prescribed 12 hours a day of...
Posted on Saturday, April 2, 2005 - 17:00, By: Christina Medvescek
No ramps. No grab bars. No elevators. No access. No fair. Although the Americans with Disabilities Act (ADA) has been federal law since 1990, in many places accessibility still isn’t a reality.
Posted on Thursday, July 1, 2004 - 07:01, By: Christina Medvescek

The long and winding road

Posted on Tuesday, June 1, 2004 - 07:01, By: Christina Medvescek
When you decide it’s time to jump off the work train, there are a couple of government safety nets ready to catch you. Recent changes have made these nets a little stronger for people with ALS.
Posted on Monday, September 1, 2003 - 15:56, By: Christina Medvescek
It’s now much easier for a person with ALS to get Social Security Disability Insurance (SSDI) benefits, thanks in part to a push by an Ohio man with ALS, John Hunter.