Don’t see what you’re looking for? Use the search box on MDA’s Quest magazine.
Posted on Tuesday, November 1, 2011 - 10:00, By: Amy Madsen
Editor's note: This is part of a larger story about the science and effects of frontotemporal dementia (FTD) in ALS. For more information, see When the Thinking Parts of the Brain Go Awry in ALS.
Posted on Thursday, July 1, 2010 - 14:38, By: Miriam Davidson
Erin Worsham and her husband tried to have a baby for six years, with no luck. They had accepted they would never be parents. Then, in a twist of fate worthy of a novel, Worsham got pregnant the day after she was diagnosed with ALS.
When Worsham learned of her pregnancy, she was delighted. Her...
Caring for caregivers, too
Posted on Sunday, November 1, 2009 - 13:22, By: Amy Madsen
When you have questions or need help, when you want to share tips and tricks or opinions, or when you just need to hear from someone who’s “been there,” one of the first places you can turn is an MDA ALS support group.
Although these groups vary widely in the way they’re organized and scheduled,...
The medical reason why some with ALS survive for years, even decades, is unknown. But long-term survivors — and their caregivers — have a lot to teach about ALS nonetheless.
Posted on Friday, May 1, 2009 - 15:47, By: ALSN Staff
The articles below, from four long-term survivors and two long-term caregivers, offer insights and advice about dealing with ALS — whether for the long haul or the short run. Although each journey with ALS is unique, these “old pros” agree that the secret of survival has as much to do with ways to...
Happiness may be only one of many outcomes
Posted on Friday, May 1, 2009 - 15:40, By: ALSN Staff
When it comes to being counted in the approximately 10 percent of people who live 10 or more years after an ALS diagnosis, there are no proven strategies and no guarantees. Maintaining the best, most satisfying life possible, however — a worthy goal in its own right — may increase the odds of being...
Recognition and treatment are key
Posted on Sunday, June 1, 2008 - 07:53, By: Amy Madsen
A bout of depression can bring added difficulty to a life already complicated by ALS. To keep depression from bringing you down, check out these 10 tips — culled from a variety of expert sources — for understanding, spotting and stopping it.
Keeping creative expression alive
Posted on Saturday, March 1, 2008 - 14:07, By: Kathy Wechsler
No matter how you look at it, the losses associated with the progression of ALS are always difficult and hugely significant.
For artists, this loss goes beyond the inability to make a living or participate in a favorite hobby. Painting, writing, singing, playing music and other art forms are...