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Eligible individuals with a diagnosis of pseudobulbar affect (uncontrolled laughing or crying) now can gain free or low-cost access to a drug that treats it
Posted on Friday, June 8, 2012 - 02:26, By: Amy Madsen
A new Patient Assistance Program can help people with a diagnosis of pseudobulbar affect (PBA) get a medication designed to treat the condition at low or no cost.
Treatment with the HDAC inhibitor trichostatin A delayed disease onset and increased survival time in SOD1 research mice
Posted on Thursday, July 28, 2011 - 13:47, By: Amy Madsen
An experimental compound called trichostatin A (TSA) has been shown to improve nerve-cell survival, increase strength and muscle weight, and result in longer life span in mice with a disease resembling ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease).
Posted on Saturday, January 1, 2011 - 14:18, By: Amy Madsen
A biomarker is any biological indicator that doctors or researchers can objectively measure and evaluate to determine an individual’s health.
Examples of common biomarkers include body temperature and heart rate, a mutated gene or brain and spinal cord images obtained through imaging techniques...
At ALS TDI's 2010 Leadership Summit experts discussed the past, present and future of ALS research
Posted on Monday, November 1, 2010 - 13:44, By: Amy Madsen
ALS Therapy Development Institute (ALS TDI) CEO and Chief Scientific Officer Steve Perrin presented updates on the Institute’s drug development pipeline for ALS during the research symposium portion of a two-day ALS conference.
The MDA-supported nonprofit biotech’s 2010 Leadership Summit...
New guidelines for physicians caring for ALS patients released by the American Academy of Neurology
Posted on Tuesday, October 13, 2009 - 13:57, By: Margaret Wahl
The American Academy of Neurology (AAN) released its new guidelines on patient care in amyotrophic lateral sclerosis (ALS) on Oct. 13, 2009. Several MDA-affiliated physicians were involved in their development.
To read the published guidelines, see
Posted on Friday, May 1, 2009 - 15:33, By: Other
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference. — from a prayer by Reinhold Niebuhr
There are few things that are certain in ALS, including what to do to ensure (or avoid) longer survival time. There are several...
Energy-conservation strategies, medical interventions may help
Posted on Wednesday, April 1, 2009 - 09:16, By: Amy Madsen
Fatigue — a feeling of tiredness, exhaustion or lack of energy — is a common condition in people with ALS. Those who experience it may move and speak more slowly than their remaining muscle function would seem to allow, and may curtail their activities. For some, it is the major reason contributing...