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This first of a series of three stories covering the 2014 MDA Clinical Conference discusses implications of new types of genetic testing
Posted on Monday, March 31, 2014 - 12:35, By: Margaret Wahl
“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.
MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care
Posted on Monday, March 10, 2014 - 12:27, By: Margaret Wahl
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members...
The American Academy of Neurology, with support from MDA, has developed measures with which to document the quality of care delivered to ALS patients
Posted on Friday, January 17, 2014 - 14:31, By: Margaret Wahl
The American Academy of Neurology (AAN) has published new quality measures for the care of patients with amyotrophic lateral sclerosis (ALS). The measures, which are based in part on the AAN's 2009 ALS care guidelines, are designed to help researchers measure the quality of care being delivered to...
Newest clinic to be designated an MDA/ALS center is located at Louisiana State University (LSU) Health Sciences Center New Orleans School of Medicine
Posted on Tuesday, May 21, 2013 - 05:00, By: Amy Madsen
The Muscular Dystrophy Association has designated the MDA clinic at Louisiana State University Health Sciences Center School of Medicine in New Orleans as an MDA/ALS center. This brings the total number of these specialized clinics to 44.
Forbes Norris center in San Francisco is recognized for its “unique, innovative service”
Posted on Thursday, October 7, 2010 - 17:23, By: Bill Norman
The Forbes Norris MDA/ALS Research and Treatment Center in San Francisco has received Program of the Year honors from the California Speech-Language-Hearing Association (CSHA).
Posted on Friday, January 1, 2010 - 11:22, By: ALSN Staff
MDA’s ALS Division has designated the MDA clinic at the University of Illinois at Chicago as an MDA/ALS center. This brings the total number of these specialized clinics to 36.
Regular clinic visits help you maximize quality of life
Posted on Sunday, February 1, 2009 - 14:45, By: Amy Madsen
Scheduling, attending and making the most of follow-up visits at your MDA clinic can make the difference between living with ALS and giving in to it.
But oftentimes, people aren’t sure exactly what to expect out of follow-up visits.
It’s a mistake, doctors say, to assume that the only purpose of...