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The American Academy of Neurology, with support from MDA, has developed measures with which to document the quality of care delivered to ALS patients
Posted on Friday, January 17, 2014 - 14:31, By: Margaret Wahl
The American Academy of Neurology (AAN) has published new quality measures for the care of patients with amyotrophic lateral sclerosis (ALS). The measures, which are based in part on the AAN's 2009 ALS care guidelines, are designed to help researchers measure the quality of care being delivered to...
Posted on Tuesday, January 3, 2012 - 10:59, By: Amy Madsen
The U.S. Food and Drug Administration approved the NeuRx Diaphragm Pacing System as a humanitarian use device (HUD), a designation given to medical devices intended for use in rare diseases. For HUD approval, the FDA requires sufficient evidence the device does not pose “an unreasonable or...
For Pat Dwyer, this newly approved respiratory assist device means 'a life better lived,' but physicians urge caution until more is known
Posted on Tuesday, January 3, 2012 - 09:49, By: Amy Madsen
Pat Dwyer of Kenmore, Wash., uses three different devices to make sure he’s getting enough air. A “sip-and-puff” ventilator supplements his breathing efforts during the day; bilevel positive airway pressure (BiPAP) helps him breathe at night; and the NeuRx Diaphragm Pacing System, or DPS,...
Posted on Thursday, July 1, 2010 - 14:38, By: Miriam Davidson
Erin Worsham and her husband tried to have a baby for six years, with no luck. They had accepted they would never be parents. Then, in a twist of fate worthy of a novel, Worsham got pregnant the day after she was diagnosed with ALS.
When Worsham learned of her pregnancy, she was delighted. Her...
Medication, care coordination and advance planning leave little to fear at the end
Posted on Monday, March 1, 2010 - 13:21, By: Amy Madsen
It likely crosses the mind of every individual who receives a diagnosis of ALS, if not immediately then soon thereafter — but it’s the question no one wants to bring up.
What happens at the end?
Despite their reluctance to ask, people want to know: When the end comes is it going to hurt? Will I...
Posted on Friday, January 1, 2010 - 11:55, By: Bill Norman
The fact that many people have the altruistic desire to donate their organs upon their deaths points out the inherent goodness of humans.
But when a potential donor has ALS, can his or her good intentions still be honored?
The answer can be hard to determine. For example, one woman wrote in an...
New guidelines for physicians caring for ALS patients released by the American Academy of Neurology
Posted on Tuesday, October 13, 2009 - 13:57, By: Margaret Wahl
The American Academy of Neurology (AAN) released its new guidelines on patient care in amyotrophic lateral sclerosis (ALS) on Oct. 13, 2009. Several MDA-affiliated physicians were involved in their development.
To read the published guidelines, see