MDA Advocacy

New training teaches individuals and families how to advocate for ALS research

Posted on Sunday, January 1, 2012 - 12:00, By: Freelance
Fight smart, not just hard. That’s the motto of Richard Bedlack, a world-renowned ALS research warrior who directs the ALS Clinic at Duke University, Durham, N.C. “Everyone I’ve ever met who is affected by ALS wants to roll up their sleeves and do something about it,” he says.
Posted on Thursday, July 1, 2010 - 15:06, By: ALSN Staff
MDA hosted three ALS-related webinars (Internet-based seminars) in May, in conjunction with National ALS Awareness Month. These webinars, which allow participants to direct questions to the featured experts, are archived on the MDA website.
Posted on Thursday, July 1, 2010 - 13:57, By: Miriam Davidson
“Advocacy is about access and empowerment,” said Annie Kennedy, MDA Vice President — Advocacy. “It’s about raising awareness of ALS and what the ALS community needs.”
Posted on Monday, March 1, 2010 - 14:31, By: ALSN Staff
ALS doesn’t play favorites. Athletes and couch potatoes, parents and grandparents, even teenagers — anyone can get it. The letters “ALS” truly could stand for “Anyone’s Life Story.”
Posted on Friday, May 1, 2009 - 10:13, By: ALSN Staff
Alex Grausnick Bob Stimson
Posted on Wednesday, April 1, 2009 - 09:16, By: ALSN Staff
On Independence Day, Major League Baseball (MLB) will “make a huge difference in the fight against Lou Gehrig’s disease,” says Augie Nieto, co-chair with his wife Lynne of MDA’s ALS Division.
Posted on Tuesday, July 1, 2008 - 15:31, By: ALSN Staff
MDA is urging Congress to pass legislation protecting the benefits of Americans with severe physical disabilities by exempting certain types of assistive technology from a restrictive new Medicare policy that went into effect this summer in 10 major metropolitan areas, says Annie Kennedy, MDA...