Staying Active

Adventurer and longtime ALS survivor Frank Andrews, and his family, have figured out how to keep taking extended road trips and going tent camping

Posted on Friday, March 1, 2013 - 09:00, By: Richard Senti
Let’s face it. Frank Andrews is a trooper. The former civil engineer and avid scuba diver from Katy, Texas, has always loved the outdoors, going way back to his Eagle Scout days, growing up in the Ozarks of southern Missouri. But in 2002, his world was turned upside down with a diagnosis of ALS.

To satisfy a lifelong dream, the author put together her own accessible tour group and discovered the challenges of travel were worth it

Posted on Sunday, July 1, 2012 - 09:47, By: Freelance
I’ve always loved to travel and I planned to continue to travel even after being diagnosed with ALS in 1999 (thankfully, a slow-progressing form). I especially wanted to visit Israel, drawn by the history, the culture and the chance to reconnect to my Jewish roots. Could I do it in a wheelchair? Is...

Profiles of people with ALS, interactive online features and local events across the country are part of MDA’s ALS Awareness Month activities

Posted on Monday, April 9, 2012 - 09:43, By: ALSN Staff
National ALS Awareness Month in May is a time when MDA seeks to increase the American public's knowledge about ALS and heighten awareness of the urgent need for treatments. This is accomplished through a mix of local and national efforts designed to educate and "put a face" on ALS. Local events...

New training teaches individuals and families how to advocate for ALS research

Posted on Sunday, January 1, 2012 - 12:00, By: Freelance
Fight smart, not just hard. That’s the motto of Richard Bedlack, a world-renowned ALS research warrior who directs the ALS Clinic at Duke University, Durham, N.C. “Everyone I’ve ever met who is affected by ALS wants to roll up their sleeves and do something about it,” he says.

MDA’s 2011 Personal Achievement Award recipient for Kentucky educates others about ALS

Posted on Monday, October 17, 2011 - 03:00, By: Richard Senti
Saying Marvin “Troy” Ellis used to be an active guy would be an understatement. A brick mason by day, the Madisonville, Ky., resident typically was up before the crack of dawn to do the first of his two-a-day workouts. A former high school star athlete, he spent his work days on construction sites...
Posted on Sunday, May 1, 2011 - 15:08, By: Freelance
Consider these statistics:

With the help of planning, persistence and technology, some people prefer to live on their own

Posted on Sunday, May 1, 2011 - 14:35, By: Miriam Davidson
When it comes to living independently with ALS, Fern Cohen of Queens, N.Y., tells it like it is. “I can live without a man,” Cohen states on her blog, “but I can’t live without my machines.”