New training teaches individuals and families how to advocate for ALS research

Posted on Sunday, January 1, 2012 - 12:00, By: Freelance
Fight smart, not just hard. That’s the motto of Richard Bedlack, a world-renowned ALS research warrior who directs the ALS Clinic at Duke University, Durham, N.C. “Everyone I’ve ever met who is affected by ALS wants to roll up their sleeves and do something about it,” he says.
Posted on Monday, September 1, 2008 - 09:16, By: Freelance
My mother has ALS and is a resident of a long term care (LTC) facility in Poplar Bluff, Mo. I’m a registered nurse who works in nursing homes, and yet I still can find myself struggling with the system over my mother’s care. My mother, Amelda Dees, age 84, depends completely on others for her care...
Posted on Tuesday, April 1, 2008 - 17:00, By: Bill Norman
Former Senator Bob Dole and David Jayne, who has ALS, pushed Congress to loosen Medicare homebound restrictions.
Posted on Thursday, November 1, 2007 - 09:16, By: Margaret Wahl
Posted on Sunday, October 9, 2005 - 17:00, By: Freelance
When I made the choice to live on a ventilator in 1997, I had no idea how many times I would have to fight for the private duty nursing (PDN) that makes it feasible for me to safely stay at home with my husband and young son. Once I became vent-dependent, my doctor prescribed 12 hours a day of...
Posted on Thursday, July 1, 2004 - 07:01, By: Christina Medvescek
Posted on Monday, September 2, 2002 - 17:00, By: Christina Medvescek
When David Jayne took up his sword against Medicare two years ago, it wasn't a solitary fight. The support and backing of the members of his Circle of Friends care team, and the organization he founded, National Coalition to Amend the Homebound Restriction (NCAHB), made his crusade possible.