MDA Muscle Walk connects MDA families and raises critical funds for lifesaving treatments and cures. So are you ready to join us?

Posted on Friday, January 16, 2015 - 16:38, By: Freelance
When Lizzie Chamberlain of Jacksonville, Ill., was 2 years old, her physical development relative to other children began to plateau — and then decline. Lizzie received a diagnosis of type 3 spinal muscular atrophy (SMA). 

Refusing to be defined by his ALS, former NFL player Steve Gleason lives a life rich with purpose

Posted on Tuesday, April 15, 2014 - 11:07, By: Other
In his eight-year NFL career as a safety and special teams standout for the New Orleans Saints, Steve Gleason never had the opportunity to play in a Super Bowl. Though Gleason’s not the type to live with regrets, watching his former team win it all in 2009 — just two years removed from his...
Posted on Tuesday, April 15, 2014 - 10:47, By: Freelance
For many, amyotrophic lateral sclerosis is a fast disease. Once diagnosed, the average life expectancy for a person with ALS can be as few as three to five years. When Ben Thomas received his ALS diagnosis at the age of 29 — just three months after the birth of his only daughter, Emmerson — his...

This second of a series of three stories covering the 2014 MDA Clinical Conference discusses pain in neuromuscular disorders

Posted on Friday, April 4, 2014 - 11:05, By: Margaret Wahl
The 2014 MDA Clinical Conference, held in Chicago March 16-19, was attended by some 500 people, mostly physicians and other health care professionals.

This first of a series of three stories covering the 2014 MDA Clinical Conference discusses implications of new types of genetic testing

Posted on Monday, March 31, 2014 - 12:35, By: Margaret Wahl
“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.

MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care

Posted on Monday, March 10, 2014 - 12:27, By: Margaret Wahl
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members...

MDA re-launches its flagship publication, with a fresh look and the same high-quality content for people living with ALS and other muscle diseases

Posted on Tuesday, January 14, 2014 - 13:43, By: ALSN Staff
The Winter 2014 issue of Quest marks a new chapter for MDA’s flagship publication in print. Our goal with this redesign is to provide you, our dedicated readership, with a more contemporary and visually dynamic resource through which to present the research news and broader narratives that matter...