Amyotrophic Lateral Sclerosis - ALS

A phase 2 trial of neural stem cell transplantation was mostly well tolerated, with about half the patients responding to the treatment

Posted on Tuesday, March 17, 2015 - 11:23, By: Margaret Wahl
Maryland-based biotechnology company Neuralstem announced in a March 12, 2014, press release, that a phase 2 trial of its NSI-566 neural stem cells in 15 people with amyotrophic lateral sclerosis (ALS) has shown that the surgical transplantation procedure and the cells themselves, up to a dose of...

Investigational drug GM604 has shown some intriguing results in a very small number of ALS patients

Posted on Thursday, January 22, 2015 - 10:13, By: Margaret Wahl
Biopharmaceutical company Genervon has announced what it considers encouraging  results from a "compassionate use" trial of its experimental drug GM604 in a single patient with advanced amyotrophic lateral sclerosis (ALS).

MDA's Team Momentum made huge strides in its first year and is poised for more success in 2015

Posted on Friday, January 16, 2015 - 16:51, By: Other
Through MDA’s Team Momentum program, participants in endurance races (marathons and half marathons) around the county help raise money to fight muscle disease. These participants receive world-class training, team camaraderie and support for their races, as well as tips and resources for...

MDA Muscle Walk connects MDA families and raises critical funds for lifesaving treatments and cures. So are you ready to join us?

Posted on Friday, January 16, 2015 - 16:38, By: Freelance
When Lizzie Chamberlain of Jacksonville, Ill., was 2 years old, her physical development relative to other children began to plateau — and then decline. Lizzie received a diagnosis of type 3 spinal muscular atrophy (SMA). 


Posted on Tuesday, January 13, 2015 - 12:04, By: Margaret Wahl
Update (March 17, 2015): Neuralstem announced on March 12, 2015, that a phase 2 trial to test transplantation into the spinal cord of its NSI-566 neural stem cells showed the procedure was generally safe and well tolerated in 15 ALS patients (with one exception) and that stabilization or...

Stanford University is collecting samples of blood, muscle and other tissues from people with neuromuscular disorders for use in research

Posted on Wednesday, January 7, 2015 - 15:36, By: Margaret Wahl
Ever wondered how someone with a neuromuscular disorder in his or her family might contribute to research efforts in this field?

MDA has joined forces with the ALS Association to fight ALS through a grant to James Shorter at the University of Pennsylvania

Posted on Wednesday, December 3, 2014 - 14:09, By: Margaret Wahl
MDA has joined forces with the ALS Association (ALSA) to fund a new research project aimed at finding a potential therapy for amyotrophic lateral sclerosis (ALS). The two organizations have made a $240,000 award to molecular biologist James Shorter at the Perelman School of Medicine at the...