A better understanding of ALS and other neurodegenerative illnesses in American Indians and Alaska Natives could increase awareness, and improve treatment and allocation of resources

Posted on Friday, March 8, 2013 - 15:20, By: Amy Madsen
The number of new cases of amyotrophic lateral sclerosis (ALS) identified each year (incidence) and the number of people living with the disease (prevalence) appears to be lower in American Indians and Alaska Natives than in white populations. Further studies are needed to determine the reason for...

Amorfix Life Sciences is developing a blood test designed to detect and measure misfolded SOD1 protein, which is thought to play a role ALS

Posted on Friday, February 1, 2013 - 11:44, By: Amy Madsen
Development is under way of a blood test that may help doctors rule in or rule out a diagnosis of amyotrophic lateral sclerosis (ALS).

The combined effects of astrocytes and SOD1 protein appear to be toxic to motor neurons in models of both inherited and sporadic ALS

Posted on Monday, August 29, 2011 - 17:11, By: Amy Madsen
Astrocytes — cells that normally support and protect nerve cells — have been found to cause motor neuron degeneration in newly created human cellular models of both inherited and noninherited ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease). Scientists tied the astrocytes' effects, in...

Abnormalities in the ubiquilin 2 gene can cause ALS, and accumulations of ubiquilin 2 protein — even without gene mutations — also are associated with the disease

Posted on Monday, August 22, 2011 - 18:18, By: Margaret Wahl
 A group of researchers led by Teepu Siddique at Northwestern University Feinberg School of Medicine in Chicago has identified abnormalities in the ubiquilin 2 gene and protein as important contributors to several forms of amyotrophic lateral sclerosis (ALS).

Officials encourage everyone with ALS, especially those newly diagnosed, to enroll and complete all surveys

Posted on Thursday, July 14, 2011 - 11:24, By: Miriam Davidson
In hopes of collecting as much information as possible, the National ALS Registry, which opened in October 2010, already is expanding its reach. Registry officials have made the enrollment process easier and are adding surveys about potential risk factors to the registry’s website.

'ALS Starter Kit' will address equipment evaluations, health care teams, Medicare and other topics for those with a recent diagnosis and their families

Posted on Friday, May 20, 2011 - 14:41, By: Miriam Davidson
Every day in the United States, about 13 people receive a diagnosis of ALS (amyotrophic lateral sclerosis, or Lou Gehrig’s disease). That’s 5,000 Americans a year who are new to this disease. MDA's ALS Division wants to reach out to these people and their families, encourage and support them, and...
Posted on Tuesday, March 1, 2011 - 11:15, By: Margaret Wahl
New insights and perspectives on the biology of ALS, best practices in the care of individuals with the disease and future directions for development of ALS therapies were the central themes of the 21st International Symposium on ALS/MND (Motor Neuron Disease) that took place in Orlando, Fla., Dec...