medical management

This first of a series of three stories covering the 2014 MDA Clinical Conference discusses implications of new types of genetic testing

Posted on Monday, March 31, 2014 - 12:35, By: Margaret Wahl
“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.

MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care

Posted on Monday, March 10, 2014 - 12:27, By: Margaret Wahl
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members...

An MDA-supported study of 24 ALS patients showed those on high-calorie, high-carbohydrate tube feedings fared better than those on control or high-calorie, high-fat formulas

Posted on Wednesday, March 5, 2014 - 15:19, By: Margaret Wahl
A study supported in part by MDA has found that a high-calorie, high-carbohydrate diet is safe and well-tolerated in late-stage amyotrophic lateral sclerosis (ALS), that it leads to moderate weight gain, and that it may slow disease progression.

The American Academy of Neurology, with support from MDA, has developed measures with which to document the quality of care delivered to ALS patients

Posted on Friday, January 17, 2014 - 14:31, By: Margaret Wahl
The American Academy of Neurology (AAN) has published new quality measures for the care of patients with amyotrophic lateral sclerosis (ALS). The measures, which are based in part on the AAN's 2009 ALS care guidelines, are designed to help researchers measure the quality of care being delivered to...

ALS researcher Adriano Chiò discusses what’s been learned about why ALS hurts

Posted on Monday, July 1, 2013 - 09:00, By: Amy Madsen
It used to be said that pain isn't associated with amyotrophic lateral sclerosis (ALS). Used to. Although typically not considered a primary consequence of ALS, researchers and clinicians are realizing that pain does play a role for people with the disease. In fact, in a pair of recent studies...

Don’t tough it out — addressing pain symptoms improves quality of life, says an ALS nurse

Posted on Monday, July 1, 2013 - 09:00, By: Amy Madsen
Pain in ALS is very personalized, says "The ALS Nurse," Mary Beth Geise. "If you're experiencing it, don't ignore it — follow your feelings and seek help."

Newest clinic to be designated an MDA/ALS center is located at Louisiana State University (LSU) Health Sciences Center New Orleans School of Medicine

Posted on Tuesday, May 21, 2013 - 05:00, By: Amy Madsen
The Muscular Dystrophy Association has designated the MDA clinic at Louisiana State University Health Sciences Center School of Medicine in New Orleans as an MDA/ALS center. This brings the total number of these specialized clinics to 44.

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