overview

An MDA-supported research team has found that expansions of the C9ORF72 gene cause formation of abnormally shaped DNA and RNA, with adverse effects on cells

Posted on Wednesday, April 23, 2014 - 15:11, By: Margaret Wahl
Jiou Wang, an MDA research grantee at Johns Hopkins University, says the new findings could have implications for several disorders.

Refusing to be defined by his ALS, former NFL player Steve Gleason lives a life rich with purpose

Posted on Tuesday, April 15, 2014 - 11:07, By: Other
In his eight-year NFL career as a safety and special teams standout for the New Orleans Saints, Steve Gleason never had the opportunity to play in a Super Bowl. Though Gleason’s not the type to live with regrets, watching his former team win it all in 2009 — just two years removed from his...
Posted on Tuesday, April 15, 2014 - 10:47, By: Freelance
For many, amyotrophic lateral sclerosis is a fast disease. Once diagnosed, the average life expectancy for a person with ALS can be as few as three to five years. When Ben Thomas received his ALS diagnosis at the age of 29 — just three months after the birth of his only daughter, Emmerson — his...

This second of a series of three stories covering the 2014 MDA Clinical Conference discusses pain in neuromuscular disorders

Posted on Friday, April 4, 2014 - 11:05, By: Margaret Wahl
The 2014 MDA Clinical Conference, held in Chicago March 16-19, was attended by some 500 people, mostly physicians and other health care professionals.

This first of a series of three stories covering the 2014 MDA Clinical Conference discusses implications of new types of genetic testing

Posted on Monday, March 31, 2014 - 12:35, By: Margaret Wahl
“Knowing, if not all, is almost all,” said Matthew Harms, a neurologist and neurophysiologist from Washington University in St. Louis, in his presentation on genetic testing for neuromuscular disorders at the 2014 MDA Clinical Conference, held in Chicago March 16-19.

MDA's 2014 Clinical Conference on neuromuscular disease brings together health professionals from across the country and focuses on improving lives through excellence in care

Posted on Monday, March 10, 2014 - 12:27, By: Margaret Wahl
"Optimizing Care: Improving Lives Through Clinical Excellence" is the theme of the 2014 MDA Clinical Conference, which takes place March 16-19 at the Hyatt Regency in Chicago. A secondary theme — "I am progress" — also will be in evidence, referencing the crucial role that MDA clinic team members...

The American Academy of Neurology, with support from MDA, has developed measures with which to document the quality of care delivered to ALS patients

Posted on Friday, January 17, 2014 - 14:31, By: Margaret Wahl
The American Academy of Neurology (AAN) has published new quality measures for the care of patients with amyotrophic lateral sclerosis (ALS). The measures, which are based in part on the AAN's 2009 ALS care guidelines, are designed to help researchers measure the quality of care being delivered to...

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