support and resources

New training teaches individuals and families how to advocate for ALS research

Posted on Sunday, January 1, 2012 - 12:00, By: Freelance
Fight smart, not just hard. That’s the motto of Richard Bedlack, a world-renowned ALS research warrior who directs the ALS Clinic at Duke University, Durham, N.C. “Everyone I’ve ever met who is affected by ALS wants to roll up their sleeves and do something about it,” he says.

A fund founded by a father with familial ALS provides four college scholarships; applications due Jan. 6, 2012

Posted on Friday, December 2, 2011 - 06:00, By: ALSN Staff
The Merfeld Family Foundation Scholarship Fund — a national scholarship to help children of parents with amyotrophic lateral sclerosis (ALS) pay for their college education — is now accepting applications for the fall 2012 term. The deadline to apply for one of four $2,500 scholarships is Jan. 6....
Posted on Tuesday, November 1, 2011 - 10:00, By: ALSN Staff
In recognition of National Family Caregivers Month, MDA is shining a light on family caregivers across the nation, via a special interactive caregivers’ website, MDA Salutes Caregivers.

'Gib's Odyssey' and other book reviews

Posted on Friday, July 1, 2011 - 14:51, By: ALSN Staff
Gib’s Odyssey: A Tale of Faith and Hope on the Intercoastal Waterway, Walter G. Bradley, 2011, 213 pages, Lyons Press; available through local and online booksellers ($22.95).
Posted on Monday, November 1, 2010 - 15:05, By: ALSN Staff
In order to help doctors and scientists find treatments for ALS, the Agency for Toxic Substances and Disease Registry (ATSDR) has developed a national registry to collect information from people living with the disease. Here is a bit of background on the new registry, which opened in October. What...
Posted on Wednesday, September 1, 2010 - 09:27, By: ALSN Staff
With the holidays just around the corner and air travel likely for many families, now is the opportune time for people with disabilities to carefully plan their sojourns. Learn from others “Traveling with a disability is not easy, but with some extra preplanning and research, it is completely...
Posted on Saturday, May 1, 2010 - 14:09, By: Miriam Davidson
How many times in your journey with ALS have you heard someone say, “Let me know if there’s anything I can do to help?” “Thanks, I will,” is usually the response, but then no one follows up. Family and friends may be sincere and well-meaning in their offers of help, but they don’t realize how hard...