MDA/ALS Newsmagazine Vol. 13, No. 4

April 2008

Cover Story

iPals get connected via the World Wide Web
To some, the Internet is a good time; to others it’s a time-waster. Some say it promotes isolation, while others point out that it lets them reach out and touch someone on the other side of the world.  Some praise its virtues; others decry its faults. Say what you will, but to people with...

Features

Richard and Susan Govoni of Cape Cod, Mass., are big train travel buffs, in part because they say air travel “has become a tremendous nuisance and hassle.” Susan, who received an ALS diagnosis April 2007, and Richard find trains less congested, quieter and more convenient, even though “the journeys...
Deciding whether to take an experimental medication outside or inside a clinical trial can be tough for people with ALS. With the excitement about lithium as a potential treatment for ALS and the proliferation of clinical trials, people with the disease are facing some tough decisions....
Former Senator Bob Dole and David Jayne, who has ALS, pushed Congress to loosen Medicare homebound restrictions. After two years of testing the waters and one year of studying test results, the federal government’s Home Health Independence Demonstration has little to show for the time and...

Research Roundup

FDA confirms rat study results are reason for arimoclomol trial hold According to a Feb. 11 press release from CytRx, developer of arimoclomol, the company has received written correspondence from the U.S. Food and Drug Administration (FDA) clarifying the agency’s decision to place a hold on the...

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