MDA/ALS Newsmagazine Vol. 14, No. 9

November-December 2009

Cover Story

Caring for caregivers, too
When you have questions or need help, when you want to share tips and tricks or opinions, or when you just need to hear from someone who’s “been there,” one of the first places you can turn is an MDA ALS support group. Although these groups vary widely in the way they’re organized and scheduled,...

Features

Several recent studies by MDA-supported researchers have furthered interest in the possible benefits of targeting muscle instead of nerve tissue as a means to slow loss of strength in people with ALS, traditionally considered a nervous system disease. One potential muscle-targeting therapeutic strat...
Name almost any scenic part of America with decent roads, and chances are good it’s been visited by someone with ALS in a motor home (RV). Far from being a barrier, having ALS — at least in the case of these three families — has been the motivation to hit the road in a big self-contained motorized r...
A voice is an important part of a person’s identity. Personality and emotions echo with every inflection and pronounciation quirk, in every “hello” and “I love you.” A voice is an audible signature that loved ones know anywhere. Not everyone with ALS loses their voice, but it’s a common symptom, esp...
The American Academy of Neurology released its new guidelines on patient care in ALS on Oct. 13, 2009. Several MDA-affiliated physicians were involved in their development. ALS Guidelines: Drug, nutritional and respiratory therapies ALS Guidelines: Multidisciplinary care, symptom management and cog...
MDA’s equipment resource program has wheelchairs, walkers, communication devices, lift chairs and other assistive equipment available for use at no cost by people registered with MDA. MDA also gladly welcomes donations of lightly used medical and assistive equipment that is no longer needed by...

Research Roundup

Why wait for the next ALS Newsmagazine? Receive monthly e-mail summaries of breaking research news directly in your inbox. Go to quest.mda.org and click "Quest News Sign Up." Trial of SOD1 blocker set to open soon A phase 1 clinical trial of the experimental drug ISIS-SOD1-Rx (formerly ISIS-333611...

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