MDA/ALS Newsmagazine Vol. 15, No. 4

July-August 2010

Cover Story

A communication system that reads brainwaves helps people with ALS speak their minds
Note: This article was titled "The Thinking Cap" in the print edition of the July-August 2010 MDA/ALS Newsmagazine. Cathy Wolf of Katonah, N.Y., is able to manage only a small amount of muscle movement in her face and neck. Still, she’s helping test an alternative communication system that, it’s...

Features

Augie Nieto, co-chair with his wife Lynne of MDA’s ALS Division and head of MDA’s ALS research initiative Augie’s Quest, has written his latest book using a toe-operated trackball. Despite the difficulty of researching and writing a book while unable to move most of his muscles or speak, Nieto trave...
“Advocacy is about access and empowerment,” said Annie Kennedy, MDA Vice President — Advocacy. “It’s about raising awareness of ALS and what the ALS community needs.” Annie Kennedy MDA’s national advocacy office in Washington, D.C., works toward four goals on behalf of people affected by AL...
Erin Worsham and her husband tried to have a baby for six years, with no luck. They had accepted they would never be parents. Then, in a twist of fate worthy of a novel, Worsham got pregnant the day after she was diagnosed with ALS. When Worsham learned of her pregnancy, she was delighted. Her neuro...
As reliable as the turning of the seasons, the Jerry Lewis MDA Telethon will once again fill the airwaves Labor Day weekend, beginning at 6 p.m. PST, Sept. 5. The 21½-hour show features a new look, new segments and some really new talent — four winners of a national musical talent competition select...
MDA hosted three ALS-related webinars (Internet-based seminars) in May, in conjunction with National ALS Awareness Month. These webinars, which allow participants to direct questions to the featured experts, are archived on the MDA website. ALS Medical Management, produced May 10, featured three neu...
In continuing efforts to refine its preclinical drug development program, the ALS Therapy Development Institute (ALS TDI) of Cambridge, Mass., has added a new research mouse model to its operations, along with two new projects aimed at helping researchers test and develop therapies in the new mouse....

Research Roundup

Neuraltus targeting immune system cells Neuraltus Pharmaceuticals, of Palo Alto, Calif., is developing a small molecule whose target is regulation of immune system cells believed to contribute to neuroinflammation and disease progression in ALS. According to Andrew Gengos, president and CEO of...

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