MDA/ALS Newsmagazine Vol. 9, No. 10

Cover Story

Almost four years ago our granddaughter, Kaity Miller, was born, turning our lives upside down, inside out and all the way around with joy. One year later, I was diagnosed with ALS. As I realized I might not have as many years with my beloved grandchild as I’d dreamed, I began considering how to...

Features

Kathy and Paul Ball Kathy and Paul Ball drove to Florida on Sunday, Aug. 29, with nary a thought about hurricanes. At the last minute they decided to bring Kathy’s manual wheelchair, which she recently had begun using for long distances and which would come in handy at the hospital where he...
November is the month officially set aside to honor the nation’s family caregivers, and to advocate changes that support and empower their caregiving. Organized by the National Family Caregivers Association, National Family Caregivers Month 2004 — with the theme “Share the Caring!” — focuses on publ...
Cheryl New says technology makes ALS "manageable" instead of "terminal." Alison Grossman, a clinical neuropsychologist associated with the Kessenich Family MDA/ALS Center at the University of Miami, says she got a surprise when she first began counseling ALS patients. Grossman had worked wi...

Research Roundup

Cellular transport protein implicated A research group led by Mayana Zatz at the Biosciences Institute of São Paulo (Brazil) University has identified a mutation in a chromosome 20 gene as a likely cause of motor neuron diseases in some families. Motor neurons are the muscle-controlling nerve...

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