MDA/ALS Newsmagazine Past Issues

November-December 2008

Role Reversal / Online Support for ALS Family Caregivers · 'Tis the Season for New Holiday Traditions · Reasons Why I’m Grateful to ALS · One Man’s Search for Family in Two Worlds ·ALS Research Roundup · Stem cells entered nervous system but didn’t slow ALS · Supercharged stem cells save nerve cells, lengthen life span in ALS rats · T-cells provide protection in ALS mice · FDA finds no connection between statins and increased ALS risk · ALS Registry Act passed · ALS disability benefits for vets confirmed · Letter to the editor

October 2008

The ‘EYES’ Have It · A New Concept in ALS Care Facilities · Baby, It’s Cold Outside! · Flaws in Detoxifying Enzymes Again Implicated In ALS Susceptibility · ALS Research Roundup ·  Scientists create nerve cells from skin cells of woman with ALS · Biomarker study opens across US · UC Irvine professor seeks people who may have rare muscle and bone disorder · MDA/ALS Centers to help ALS TDI identify ALS ‘signature’ · ALS to be a major focus in new MDA Clinical Research Network · Sangamo BioSciences to test compound that boosts VEGF A protein

September 2008

ALS Research Roundup · Study suggests Gulf War-associated increase in ALS is time-limited and correlated with location · ALS TDI finds lithium ineffective, apocynin ambiguous in ALS mice · VA broadens ALS care coverage, while studies of veterans continue · MDA-supported lithium study now open at 10 sites · Umbilical-cord blood cells may have therapeutic potential in ALS · FDA approves diaphragm pacing system to treat people with spinal cord injuries · MDA/ALS Center directors produce collection of articles about ALS · Lights! Camera! Roll 'em! · Low-tech, Low-cost Assistance for Daily Living · Live from Las Vegas: Battle Against ALS Takes Center Stage · Soaring to New Heights for a Cure · First Person Singular: Getting Accountability in Long Term Care

July-August 2008

A Complete Communication Solution · A Bridge Between Two Worlds · In Search of Barrier-Free Living: Making the house an accessible home · New Adventures with ALS · Tips for Coping with Summer’s Heat · She Walks Miles, But in One City Block Realizes a Dream · TV Personality Honors Late Mother with ALS · MDA Supports Medicare Competitive Bidding Reform · Research Roundup: Getting past barriers

June 2008

Tips for Tackling Depression · Fighting for Benefits and Coverage · Could This Happen To You? · He Takes His Mountains One at a Time · Research Roundup · MDA-funded lithium trial is now open · Phase 2 study of KNS-760704 is open · High-dose coenzyme Q10 showed no benefit · Leaks in blood-spinal cord barrier come before nervous-system damage in mice with SOD1 ALS

May 2008

New ALS Caregiver’s Guide Released this Month · Striking Out Aspiration: A full count of strategies for protecting your lungs · A Grand Slam · MDA Puts ALS in the Public Eye · A Long and Winding Road · Research Roundup · Does a high serum cholesterol level increase survival time in ALS? · ALS-causing flaws in TDP-43 gene found in two new studies · Researchers probe possible links between genes and exposures to toxins · People with ALS sustain hope with variety of strategies

April 2008

WWW Dot W-O-W! iPals get connected via the World Wide Web · Three Years Later: A “Homebound Amendment” remains in limbo · When the Travel Bug Bites · People With ALS Face Tough Decisions About Experimental Medications · Research Roundup · FDA confirms rat study results are reason for arimoclomol trial hold · What’s going on with TDP-43? · Nerve-muscle signals are a two-way street · VEGF-B may save nerve cells without collateral damage · Review of evidence supports link between toxic exposures and illness in Gulf War vets

March 2008

The Artist Inside: Keeping creative expression alive · When a Parent Has ALS: Tips for helping children cope · Let Your Feet Do the Talking: Foot controls open doors for computer access · ALS and Vets: Searching for connections · Research Roundup · MDA to fast-track lithium trial · Arimoclomol trial on hold · Looking outside nerve cells for causes of ALS · Genes involved in axon guidance implicated in ALS · XMRV not an ALS contributor

February 2008

Research Roundup · CytRx to test arimoclomol at higher dose · Multinational study implicates DPP6 gene variant as risk factor for ALS · Protecting nerve-muscle junctions may protect nerve cells · ALS TDI collaborating with Aptagen to develop ALS-specific ‘bullets’ · Laughing/crying episodes more common than once thought · Avanir opens phase 3 trial of PBA drug · Anti-SOD1 compound on path to clinical trials · Novel Looks at how ALS Complicates Relationships with Others and Yourself · The Strain of Silence · Following Sam · In the Market for New Wheels?

January 2008

Making Memories Last Longer than a Lifetime · Keep On Keepin’ On: Wheelchair control upgrades keep you moving · Timely Tips to Help Limit Your Tax Liability · Research Roundup: ALS specialists discuss clinical trial results, methods at Toronto conference · Large-scale minocycline trial showed drug is harmful in ALS · Celecoxib and creatine combination may warrant further testing · Ritonavir eliminated, but hydroxyurea may be worth closer look · Dutch study warns against Chinese stem-cell treatments · Strenuous lifestyle may increase ALS susceptibility · Nose may provide window to brain · Portable device might make trials easier for participants · Multiple serious head injuries may increase risk of ALS

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