ALSN Vol. 10, No. 6

Posted on Wednesday, July 6, 2005 - 17:00, By: ALSN Staff
Long-ago residence on Guam is likely ALS risk factor In a study that included 140 people with ALS and another 140 without the disease, those with ALS were found to be eight times more likely to have lived on Guam, even for a few months, than were those who didn’t have ALS.
Posted on Friday, July 1, 2005 - 17:00, By: Freelance
This month marks my first anniversary of life on a vent — a tracheostomy tube and mechanical ventilator. As I look back over this year and try to sum up my feelings, the words that come to my mind are “safe harbor.” I have found a shelter, a place where I can literally and figuratively catch my...
Posted on Friday, July 1, 2005 - 17:00, By: Freelance
We’re not alone on this journey through ALS. My husband, Patrick, had ALS and I cared for him throughout his illness. As caregivers, we have the potential to burn out both emotionally and physically. My biggest piece of advice is don’t! I wore myself out, and that caused my husband more anguish....

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