ALSN Vol. 12, No. 7

Posted on Sunday, July 1, 2007 - 09:16, By: Margaret Wahl
TDP-43 protein's absence may mean SOD1 ALS is different ALS that stems from mutations in the SOD1 gene may be biochemically different from ALS from other causes, suggests a report published in the May issue of Annals of Neurology. Ian Mackenzie at the University of British Columbia in Vancouver...
Posted on Sunday, July 1, 2007 - 09:16, By: Bill Norman
Summer and fall typically bring storms that cause power outages — not a comforting thought for people who rely on electrically powered equipment to breathe. Fortunately, preparation can reduce the impact of power outages, even when hurricane-magnitude disasters strike. Existing backup Those who use...
Posted on Sunday, July 1, 2007 - 09:16, By: Bill Norman
Lisa Shelley decided more than a year ago that ALS would take a back seat in her life. In the foremost position she opted for humanity — or more specifically, helping others. Through her program Friends Like Mine, Shelley prepares gift bags for the MDA/ALS Center in Charlotte, N.C., where staff...
Posted on Sunday, July 1, 2007 - 09:16, By: Freelance
March 21, 2007. I’m sitting in an adaptive bi-ski at the top of Crawford’s Blaze run, at the Bretton Woods Mountain Resort in New Hampshire. Across the valley I have a beautiful view of the Presidential Range of the White Mountains. What’s a girl from Nashville, Tenn., who’s almost completely...
Posted on Sunday, July 1, 2007 - 09:16, By: Amy Madsen
Contrary to popular belief, hospice care seems to prolong the lives of some terminally ill patients by days or even months, according to a recent study funded by the National Hospice and Palliative Care Organization (NHPCO). The study, published in the March 2007 issue of the Journal of Pain and...

Voice banking and speech synthesis technology

Posted on Sunday, July 1, 2007 - 09:16, By: Alyssa Quintero
While there’s no easy way to prepare for losing your voice, voice banking enables people with ALS to capture their voices via recordings that can be used on Windows-based computers and alternative augmentative communication (AAC) devices. To start, you can record your voice on a Windows-based...

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