ALSN Vol. 13, No. 7

Posted on Tuesday, July 1, 2008 - 15:31, By: ALSN Staff
MDA is urging Congress to pass legislation protecting the benefits of Americans with severe physical disabilities by exempting certain types of assistive technology from a restrictive new Medicare policy that went into effect this summer in 10 major metropolitan areas, says Annie Kennedy, MDA...
Posted on Tuesday, July 1, 2008 - 12:15, By: Amy Madsen
Despite ALS, Lorri Coppola continues to train, walking a mile a day, three days a week, usually at the College of Marin close to her Greenbrae apartment. Photo by Shirley Pierce.
Posted on Tuesday, July 1, 2008 - 12:10, By: Kathy Wechsler
Summer typically is the time when people head out and enjoy the great outdoors. But people with ALS have to take a few extra precautions during these hot months, warns Lora L. Clawson, certified registered nurse practitioner and director of ALS clinical services at the MDA/ALS Center at Johns...

Expect the unexpected when your regular caregiver isn’t there

Posted on Tuesday, July 1, 2008 - 11:53, By: Freelance
Author Jeff Lester’s daughter, Kelsey, is shown here helping out with his trach care. The family discovered communicating this and other vital procedures to the temporary nurses was not an easy task.

Making the house an accessible home

Posted on Tuesday, July 1, 2008 - 11:22, By: Bill Norman
After remodeling (above), a wheelchair ramp ascends to a home’s threshold level.

Getting past barriers

Posted on Tuesday, July 1, 2008 - 10:55, By: Margaret Wahl
Gene therapy experts discuss targeting ALS-affected cells The 11th annual meeting of the American Society of Gene Therapy (ASGT) took place in Boston May 28-June 1. Among the dozens of sessions was an MDA-sponsored program on gene therapy for neurodegeneration.

As ALS TDI matures and gains stability, it fills a gap between academic and industrial research

Posted on Tuesday, July 1, 2008 - 10:43, By: Margaret Wahl
When Jerry DeZutter first came to the ALS Therapy Development Institute in 2005, meetings focused on “frank and open discussions about the life of the institute — whether it would survive,” he says.