ALSN Vol. 14, No. 5

Posted on Friday, May 1, 2009 - 17:00, By: ALSN Staff
Nancy O’Dell, longtime host of the entertainment-news show “Access Hollywood,” has accepted a new role as MDA National ALS Ambassador. O’Dell will spread awareness of MDA’s fight against ALS through media interviews, public appearances and public service announcements. For a second year, O’Dell...

The medical reason why some with ALS survive for years, even decades, is unknown. But long-term survivors — and their caregivers — have a lot to teach about ALS nonetheless.

Posted on Friday, May 1, 2009 - 15:47, By: ALSN Staff
The articles below, from four long-term survivors and two long-term caregivers, offer insights and advice about dealing with ALS — whether for the long haul or the short run. Although each journey with ALS is unique, these “old pros” agree that the secret of survival has as much to do with ways to...
Posted on Friday, May 1, 2009 - 15:43, By: ALSN Staff
Factors in Survival: Age at diagnosis, diagnostic delay, fronto-temporal dementia, gender, genetic factors and modifiers, type of onset and rate of progression all play a role in length of survival.

Happiness may be only one of many outcomes

Posted on Friday, May 1, 2009 - 15:40, By: ALSN Staff
When it comes to being counted in the approximately 10 percent of people who live 10 or more years after an ALS diagnosis, there are no proven strategies and no guarantees. Maintaining the best, most satisfying life possible, however — a worthy goal in its own right — may increase the odds of being...
Posted on Friday, May 1, 2009 - 15:33, By: Other
God grant me the serenity to accept the things I cannot change; courage to change the things I can; and wisdom to know the difference. — from a prayer by Reinhold Niebuhr There are few things that are certain in ALS, including what to do to ensure (or avoid) longer survival time. There are several...
Posted on Friday, May 1, 2009 - 15:26, By: ALSN Staff
Items in this article report on: causes of ALS, protective factors, familial ALS, sexuality survey, new book about ALS care Researchers probe protective strategies
Posted on Friday, May 1, 2009 - 11:43, By: Kathy Wechsler
When Kathy Hult of Eden Prairie, Minn., was matched with a Labrador retriever named Joy six years ago, it was love at first sight. “Joy just has been such a huge part of, not only my life, but my quality of life,” says Hult, 56, who received a diagnosis of limb-onset ALS in 1999. ALS trail blazer

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