ALSN Vol. 14, No. 8

Tips for vent and respirator users for dealing with power outages

Posted on Tuesday, September 1, 2009 - 11:37, By: Bill Norman
Home power often bites the dust when storms or other unpredictable influences play havoc with power lines and neighborhood transformer boxes. For people who use electrically powered respiratory equipment, this can be a life-threatening occurrence — unless there’s a reliable secondary source of...
Posted on Tuesday, September 1, 2009 - 11:34, By:
Nancy O’Dell, host of the entertainment-news show “Access Hollywood” and MDA’s National ALS Ambassador, has teamed with MDA to launch Betty’s Battle in honor of her mother, Betty Humphries, who died last year of ALS.
Posted on Tuesday, September 1, 2009 - 11:27, By: Kathy Wechsler
Online delivery services such as Peapod deliver groceries right to your home. Why go to them when they can come to you?
Posted on Tuesday, September 1, 2009 - 11:24, By: Amy Madsen
MDA-supported testing is under way to determine whether the commonly used drug pyrimethamine, marketed under the brand name Daraprim, may reduce levels of abnormal SOD1 protein molecules that poison nerve cells in a familial (inherited) form of ALS. A variety of mutations in the gene for the SOD1...

Why you probably should resist the lure of cures in faraway lands

Posted on Tuesday, September 1, 2009 - 11:21, By: Margaret Wahl
Stem cells are a legitimate and exciting area of ALS research, and MDA is actively exploring the potential of these cells.

These studies are powerful — and sometimes misleading

Posted on Tuesday, September 1, 2009 - 11:01, By: Margaret Wahl
It sounds like a good idea, or at least a simple idea:
Posted on Tuesday, September 1, 2009 - 10:43, By:
This article reports on research news as of Aug. 31, 2009, on: ALS TDI * Iplex * ALS-PON * emotional symptoms * stem cells   ALS TDI reports quarterly progress On July 16, 2009, the MDA-supported ALS Therapy Development Institute (ALS TDI, www.als.net) gave its quarterly research update in a...

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