ALSN Vol. 15, No. 2

Drug development, new partnerships, new Web features and more were covered in ALS TDI's first research update of the year

Posted on Monday, March 1, 2010 - 14:11, By: ALSN Staff
In January 2007, MDA and the nonprofit biotech ALS Therapy Development Institute (ALS TDI) of Cambridge, Mass., launched a three-year, $36 million drug discovery partnership. In January 2010, MDA extended that partnership with a $2.5 million grant.
Posted on Monday, March 1, 2010 - 13:45, By: ALSN Staff
This article reports news about clinical trials in ALS as of March 1, 2010, including: high-calorie diets, SOD1 blocker, altered communication, ceftraxione   Value of high-fat, high-calorie diets to be tested in ALS

Medication, care coordination and advance planning leave little to fear at the end

Posted on Monday, March 1, 2010 - 13:21, By: Amy Madsen
It likely crosses the mind of every individual who receives a diagnosis of ALS, if not immediately then soon thereafter — but it’s the question no one wants to bring up. What happens at the end? Despite their reluctance to ask, people want to know: When the end comes is it going to hurt? Will I...

People with ALS, caregivers and professionals ponder the value of internal urinary catheters

Posted on Monday, March 1, 2010 - 11:40, By: Margaret Wahl
When ALS weakened Jane Cheng’s mother, her caregivers found it took a great deal of strength to help her transfer on and off the toilet. “I twisted my ankle a few times when attempting to turn the pivot disk with my foot while supporting most of her weight,” says Cheng, who cares for her mother in...
Posted on Monday, March 1, 2010 - 10:50, By: Bill Norman
When nature calls, a hygiene sling may be just the right answer for many with ALS. Like standard slings that are used to transfer, transport or reposition patients, a hygiene (toileting) sling is suspended from a patient lift that can be maneuvered to the toilet on wheels or a ceiling track. But...

Gulf War vets with ALS not forgotten

Posted on Monday, March 1, 2010 - 10:35, By: ALSN Staff
In your January-February [2010] issue, I found your article about Gulf War ALS (“Research Roundup: Soil bacteria implicated in ALS-Gulf War connection”) very interesting. My husband Randy is one of those 40 from the Gulf who have ALS.