ALSN Vol. 15, No. 4

Posted on Thursday, July 1, 2010 - 15:06, By: ALSN Staff
MDA hosted three ALS-related webinars (Internet-based seminars) in May, in conjunction with National ALS Awareness Month. These webinars, which allow participants to direct questions to the featured experts, are archived on the MDA website.
Posted on Thursday, July 1, 2010 - 15:02, By: ALSN Staff
As reliable as the turning of the seasons, the Jerry Lewis MDA Telethon will once again fill the airwaves Labor Day weekend, beginning at 6 p.m. PST, Sept. 5.
Posted on Thursday, July 1, 2010 - 14:38, By: Miriam Davidson
Erin Worsham and her husband tried to have a baby for six years, with no luck. They had accepted they would never be parents. Then, in a twist of fate worthy of a novel, Worsham got pregnant the day after she was diagnosed with ALS. When Worsham learned of her pregnancy, she was delighted. Her...
Posted on Thursday, July 1, 2010 - 13:57, By: Miriam Davidson
“Advocacy is about access and empowerment,” said Annie Kennedy, MDA Vice President — Advocacy. “It’s about raising awareness of ALS and what the ALS community needs.”
Posted on Thursday, July 1, 2010 - 13:51, By: ALSN Staff
Augie Nieto, co-chair with his wife Lynne of MDA’s ALS Division and head of MDA’s ALS research initiative Augie’s Quest, has written his latest book using a toe-operated trackball.
Posted on Thursday, July 1, 2010 - 13:37, By: ALSN Staff
Neuraltus targeting immune system cells Neuraltus Pharmaceuticals, of Palo Alto, Calif., is developing a small molecule whose target is regulation of immune system cells believed to contribute to neuroinflammation and disease progression in ALS.

A communication system that reads brainwaves helps people with ALS speak their minds

Posted on Wednesday, June 30, 2010 - 10:57, By: Amy Madsen
Note: This article was titled "The Thinking Cap" in the print edition of the July-August 2010 MDA/ALS Newsmagazine. Cathy Wolf of Katonah, N.Y., is able to manage only a small amount of muscle movement in her face and neck. Still, she’s helping test an alternative communication system that, it’s...