ALSN Vol. 15, No. 6

Posted on Monday, November 1, 2010 - 15:10, By: Miriam Davidson
There’s been a lot of buzz about the iPad’s potential as an augmentative, alternative communication (AAC) device since Apple introduced the revolutionary, tablet-sized machine in April. For many users with speech disabilities, the iPad’s portability, varied functionality, large touch screen and...
Posted on Monday, November 1, 2010 - 15:05, By: ALSN Staff
In order to help doctors and scientists find treatments for ALS, the Agency for Toxic Substances and Disease Registry (ATSDR) has developed a national registry to collect information from people living with the disease. Here is a bit of background on the new registry, which opened in October. What...
Posted on Monday, November 1, 2010 - 14:27, By: Miriam Davidson
In most respects, Home Helpers operates like a traditional care agency. It recruits and screens trained caregivers to go into people’s homes, and help them bathe, dress, eat, cook, clean and do laundry. Its staffers run errands, go shopping and take clients to their doctor appointments.

One family's determination to grab life's gusto

Posted on Monday, November 1, 2010 - 13:57, By: Bill Norman
For someone with ALS, Martin Wallem sure manages to do a lot of hiking — not to mention deep sea fishing and snow skiing. All with a little help from his friends and some innovative sports equipment. Wallem, 40, received an ALS diagnosis in 2002, although his symptoms began a year before. He...

At ALS TDI's 2010 Leadership Summit experts discussed the past, present and future of ALS research

Posted on Monday, November 1, 2010 - 13:44, By: Amy Madsen
ALS Therapy Development Institute (ALS TDI) CEO and Chief Scientific Officer Steve Perrin presented updates on the Institute’s drug development pipeline for ALS during the research symposium portion of a two-day ALS conference.   The MDA-supported nonprofit biotech’s 2010 Leadership Summit...
Posted on Monday, November 1, 2010 - 13:15, By: ALSN Staff
Expanded ataxin 2 genes increase ALS risk Scientists working in the United States and Germany have uncovered what appears to be the most common genetic contributor to ALS so far identified. The genetic factor is a segment of the ataxin 2 gene that’s slightly longer than average, which causes the...