ALSN News (online only)
Misfolded SOD1 protein, unaccompanied by an SOD1 gene mutation, could underlie at least some cases of sporadic (noninherited) ALS
Posted on Tuesday, October 19, 2010 - 10:24, By: Margaret Wahl
A new study suggests misfolding of the SOD1 protein may be a common contributor not only to familial (inherited) amyotrophic lateral sclerosis (ALS) caused by mutations in the SOD1 gene but to the more common sporadic (noninherited) form of the disease as well.
Presentations and panel discussions at ALS TDI's 2010 Leadership Summit focused on the past, present and future of ALS research
Posted on Wednesday, October 13, 2010 - 12:43, By: Amy Madsen
Themes discussed throughout the research symposium included ALS genetics, clinical trials, the role of the immune system in disease onset and progression, biomarkers, and the use of stem cells in ALS therapeutics.
A diaphragm pacer that might forestall the need for invasive ventilation has moved one step closer to FDA approval for some with ALS
Posted on Friday, October 8, 2010 - 16:33, By: Margaret Wahl
The Synapse Biomedical NeuRx Diaphragm Pacing System (DPS), a device that stimulates the respiratory diaphragm with electrical signals, has received Humanitarian Use Device designation from the U.S. Food and Drug Administration (FDA), allowing it to be used by people with amyotrophic lateral sclerosis (ALS) who have a “stimulatable” diaphragm and are experiencing chronic breathing problems.
Forbes Norris center in San Francisco is recognized for its “unique, innovative service”
Posted on Thursday, October 7, 2010 - 17:23, By: Bill Norman
The Forbes Norris MDA/ALS Research and Treatment Center in San Francisco has received Program of the Year honors from the California Speech-Language-Hearing Association (CSHA).
Short updates on ALS research: unwanted laughing/crying spells (pseudobulbar affect), blocking cell suicide, neural stem cells
Posted on Wednesday, September 22, 2010 - 11:44, By: Margaret Wahl
Trial results announced for drug for laughing/crying jags
Winners with ALS, SMA and LGMD receive support to pursue post-graduate education
Posted on Friday, September 17, 2010 - 14:37, By: Miriam Davidson
Three accomplished scholars determinedly pursuing their educations while living with neuromuscular disease are the first winners of the CMMS Deshae Lott Ministries outreach program scholarships.
Connect with MDA
Muscular Dystrophy Association — USA
National Headquarters
3300 E. Sunrise Drive
Tucson, AZ 85718
(800) 572-1717
©2013, Muscular Dystrophy Association Inc.
All rights reserved.
All of contents copyright 2013 MDA All rights reserved.
