Amyotrophic Lateral Sclerosis, by Robert G. Miller, M.D.; Deborah Gelinas, M.D.; and Patricia O’Connor, R.N.; 246 pages, 2005, $22.95. American Academy of Neurology Press and Demos Medical Publishing, www.demosmedpub.com.
Want to know the anatomy and physiology underlying ALS? How the disease is diagnosed? What tests need to be done and what they mean? What clinical trials are all about? How to treat symptoms and live better? How to negotiate the insurance maze?
You’ll find answers to all these questions and more in this highly readable book by Robert Miller, who directs the Forbes Norris MDA/ALS Center in San Francisco; Deborah Gelinas, clinical director at the center; and Patricia O’Connor, the center’s nurse manager.
It’s part of the American Academy of Neurology Press’s Quality of Life Guide series, and is addressed to people with ALS and their families.
MDA Research Administration Director Ronald Schenkenberger has also contributed a chapter, describing MDA’s long history in ALS research and patient care. Registered dietician Alycia Chu, clinical psychologist Susan Levine, and speech therapist Amy Roman are among the other expert contributors.
The book contains a thorough index and a list of products and information sources of interest to people facing ALS.