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Newest clinic to be designated an MDA/ALS center is located at Louisiana State University (LSU) Health Sciences Center New Orleans School of Medicine
Posted on Tuesday, May 21, 2013 - 05:00, By: Amy Madsen
The Muscular Dystrophy Association has designated the MDA clinic at Louisiana State University Health Sciences Center School of Medicine in New Orleans as an MDA/ALS center. This brings the total number of these specialized clinics to 44.
Powerful testimony from individuals with ALS, caregivers, advocates and others will inform the FDA’s approach to the review and approval of new ALS therapies
Posted on Monday, February 25, 2013 - 17:41, By: Amy Madsen
Update (Feb. 28, 2013): The daylong FDA ALS webinar has been archived and is now available for viewing on the FDA site.
Posted on Monday, October 1, 2012 - 09:45, By: ALSN Staff
In a bow to the power of the Internet to instantly inform, the MDA/ALS Newsmagazine (ALSN) is advancing to a completely online magazine, beginning in January 2013. With this new format, ALSN online will expand and grow, offering new features and ways for the ALS community to communicate and...
Profiles of people with ALS, interactive online features and local events across the country are part of MDA’s ALS Awareness Month activities
Posted on Monday, April 9, 2012 - 09:43, By: ALSN Staff
National ALS Awareness Month in May is a time when MDA seeks to increase the American public's knowledge about ALS and heighten awareness of the urgent need for treatments. This is accomplished through a mix of local and national efforts designed to educate and "put a face" on ALS.
MDA Art Collection celebrates 20th year
Posted on Monday, April 9, 2012 - 09:42, By: Richard Senti
Commemorating its 20th year of exhibiting the works of artists with neuromuscular disease, the Muscular Dystrophy Association Art Collection continues to demonstrate that physical disability is no barrier to creativity.
As progress continues in drug discovery and development at the ALS Therapy Development Institute, MDA's Augie's Quest provides $2 million more in support
Posted on Monday, March 5, 2012 - 06:00, By: Amy Madsen
MDA has extended its strategic research partnership with the ALS Therapy Development Institute (ALS TDI) through 2012 and awarded a $2 million grant to support the nonprofit biotech's continued efforts to develop treatments for ALS (amyotrophic lateral sclerosis, or Lou Gehrig's disease).
New training teaches individuals and families how to advocate for ALS research
Posted on Sunday, January 1, 2012 - 12:00, By: Freelance
Fight smart, not just hard. That’s the motto of Richard Bedlack, a world-renowned ALS research warrior who directs the ALS Clinic at Duke University, Durham, N.C. “Everyone I’ve ever met who is affected by ALS wants to roll up their sleeves and do something about it,” he says.