MDA/ALS Newsmagazine Vol. 14, No. 4

April 2009

Cover Story

Energy-conservation strategies, medical interventions may help
Fatigue — a feeling of tiredness, exhaustion or lack of energy — is a common condition in people with ALS. Those who experience it may move and speak more slowly than their remaining muscle function would seem to allow, and may curtail their activities. For some, it is the major reason contributing...

Features

Donald T. Hageman Jason Goldfeder Matt Williams Nan Urban Tiffany Macias Business leaders, moms and dads, teachers, coaches, athletes, grandparents — anyone can get ALS. Putting a human face on this little-known but devastating disease is the goal of MDA’s online series “ALS: Anyone’s...
After rigorous testing and feedback from people with ALS, the Ambient Corp. has released the beta version of its Audeo speech system (pictured), which reads brain signals sent to the vocal cords and uses them to help produce speech. Designed for people with ALS, the Audeo Beta Package relays...
I’ll never forget July 4, 1939. I was 8 years old, living with my parents in a New England town. Sitting next to the Philco console radio on the floor of my parents’ kitchen, I was listening to the broadcast of Lou Gehrig Appreciation Day from Yankee Stadium. The Yankees were honoring the 36-year-ol...
On Independence Day, Major League Baseball (MLB) will “make a huge difference in the fight against Lou Gehrig’s disease,” says Augie Nieto, co-chair with his wife Lynne of MDA’s ALS Division. In partnership with MDA’s Augie’s Quest and three other national ALS organizations, MLB is launching...

Research Roundup

Items in this article report on research findings as of April 1, 2009, including: genetic causes of ALS, familial ALS, arimoclomol, SOD1 ALS, modafinil, Iplex, ceftriaxone, lithium, stem cell model of ALS. Not long ago, doctors were quick to answer the question “is ALS genetic?” with “only...

Advertisements

myMuscleTeam