MDA/ALS Newsmagazine Vol. 7, No. 7

Features

When David Jayne took up his sword against Medicare two years ago, it wasn't a solitary fight. The support and backing of the members of his Circle of Friends care team, and the organization he founded, National Coalition to Amend the Homebound Restriction (NCAHB), made his crusade possible. A...
John Bach Weakness of the muscles that control or influence breathing or swallowing is by far the most serious problem in ALS and requires decisions about whether and how to prolong life. A study in the July issue of the journal Chest says that noninvasive ventilation (mechanical ventilatio...
Many people with ALS maintain an amazingly upbeat attitude, but even the strongest people get down sometimes. If depression is becoming a concern, consider some of these strategies from experienced caregivers: Provide meaningful work When her brother, Michael, got ALS, Deb Stanfa of Cherry Hill, N....
Counting on Kindness: The Dilemmas of Dependency, by Wendy Lustbader, 1991, 206 pages. Free Press, (206) 985-5400, www.lustbader.com. Lustbader, a medical social worker, has taken a unique look at caregiving — from the perspective of the person receiving the care. Her book is valuable both for peopl...

Research Roundup

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